Living with cerebral palsy is enormously difficult. But what if you never knew you had it? This is the incredible story of Ilana Estelle.
Born the second of premature twins, from a young age Ilana knew she was different, but for all the wrong reasons. A child of the 60s, Ilana experienced first-hand the way that disability was so often brushed under the carpet and not spoken about. Her constant physical and mental struggles made her feel isolated, alone, frustrated, and misunderstood… it took 46 years for her to find out why.
Part memoir, part motivational guide, Cerebral Palsy: A Story is Ilana’s open and honest journey from an angry, confused child, knowing something was wrong, but not knowing what, to the ‘real’ her – a courageous woman using her experiences and lessons to create inspiring messages about mental and physical health, positivity, resilience and change.
She went in-depth on how emotional stress can affect a CP’s immunity. A positive attitude, surrounding yourself with positive people is vital for a CP person’s overall health. Ilana Estelle gave examples of how to achieve a happy mind, cope with stress, and live a healthier life.
There were many sections in Cerebral Palsy: A Story: Finding the Calm that could apply to those not living with CP: foods to maintain good high blood pressure, foods that alleviate arthritis pain, and parenting tips. At times, these areas seemed to deter away from the topic at hand—cerebral palsy. While I appreciate the extra health tips and her parenting advice, I wanted more about her journey in life with CP.
Ilana Estelle discussed the misdiagnosis at the age of 2 (2.5). She spoke of the lack of family support (often) and felt guilty and depressed about failing in life. She also emphasized what she learned in the process.
- know your limitations
- ask for help
- gain knowledge about your condition
To parents, she stressed having a sit-down and make sure all siblings are aware that people with CP need patience, understanding, compassion, and assistance.
While Ilana Estelle has struggled in life and will as she continues her journey in this world, I’m pleased to see she’s not bitter or angry over what’s occurred in the past. She’s working hard to achieve a happy mind. Peaceful soul.
You can’t change the past, but your actions today can pave the road for a better tomorrow.
1 (lowest) and 5 (highest)
That discovery turned out to be a unique and life-changing experience that has forced Ilana to stand back and look at her life experiences differently. On her late diagnosis, Ilana set up her website The CP Diary and uses her experiences to explore her emotional and physical health, with an inspiring message advocating resilience and change.
Ilana likes to spend her days writing and blogging about anything that contributes to her health and well being. She is an animal advocate and is passionate about environmental issues. When she is not writing to tending to her blog, Ilana enjoys days out exploring the Yorkshire countryside. Ilana lives with her husband and their much-loved cat, in Yorkshire. Her grown up son and daughter both live in London.